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Protocol Development

Here, the scientific idea is translated into a detailed operational plan. This is the most critical feasibility stage. The protocol's inclusion/exclusion criteria, schedule of assessments (SoA), and required procedures are stress-tested. Is the I/E criteria too narrow, creating 'unicorn' patients? Is the SoA too burdensome for patients and sites? Feedback from investigators and patient advocates is crucial to designing a protocol that is both scientifically rigorous and practically executable.

Key Activities
  • Drafting clear, unambiguous, and scientifically necessary inclusion/exclusion criteria.

  • Designing a Schedule of Assessments (SoA) that balances data needs with patient and site burden.

  • Engaging with principal investigators and patient advocacy groups for feedback on the protocol's practicality.

Common Challenges
  • Designing overly complex or burdensome procedures that deter participation.

  • Creating unrealistic patient requirements that make recruitment nearly impossible.

  • Having poorly defined or subjective endpoints that complicate data collection and analysis.